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Mary W (chloeblack101), Pituitary Bio
I was dianosed with Cushing’s Disease in 1998. At the time I looked like a textbook case. Moon face, buffalo hump, wasted extremities, straiea, hypertension, pancreatitis. Had resectioning of pituitary...
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Gail M W (Hello Kitty), Rathke’s Cleft Cyst
In Nov 2011 I had pit surgery and the lesion was found to be a Rathke’s Cleft Cyst, 5mm by 4mm by 6mm. It was drained. They didn’t remove the cyst wall bc of risk of further damage to the pit. There...
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Dana (abnormalaties), Adrenal Bio
im a 45 yr old female been feeling sick for 5-6 years. like i got flu all the time,real big and fat i am,aching wrists ,knees,SLEEPY always.anxiety ridden….. fatty deposits on collarbone.adrenal mass...
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Mary (TheGoat), Pituitary Bio
I had 3 transphenoidal surgeries 1 month apart in 2003. I had a csf leak and when it was repaired the pituitary had become necrotic and I lost the whole gland. They said that did not cure the cushings...
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Cynthia (K8sMom2002), Adrenal Bio
The adrenal glands sit atop the kidneys. (Photo credit: Wikipedia I have just been diagnosed with glaucoma, and I possibly have subclinical Cushings … though I am small (4’10″, 99 pounds), I’ve...
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Renee (Renee), Pituitary Bio
I am really not sure where to start! I have struggled with medical issues my entire life. I am 25 born with many anomalies–bladder, cleft lip/cleft palate, dilated aorta, hydronephrosis…the list...
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Michelle (tigs68), Pituitary Bio
hi everyone i was on the board about 15 years ago with my first taste of cushings disease, i had a reocurrance in 2008 and a second operation, and am now under investigation again
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Lee B, Ectopic (pituitary and lung tumor) Bio
Another Golden Oldie, Lee had both pituitary and lung tumors. This bio was originally posted 06/07/2008. ~~~ Whee1 where to start!. During 2002 noticed that I had extreme daily hair loss, weight gain...
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Magdalena, Food-Dependent Cushing’s Bio
Magdalena is from Windsor, Ontario (Originally Poland). She has Food-Dependent / GIP-Dependent Cushing’s Syndrome. This means that genetically, she has cells on her adrenals that are only supposed to...
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Leiana, Adrenal Bio
Hello and Good Morning!! First i want to say that this is a great website..very informative and hopefully I can find some help here. I was diagnosed with autoimmune adrenal insuffiency back in 2009...
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Andrea P, Steroid-Induced Cushing’s
What can you do when the cure might be worse than the disease? “Have you thought of losing some weight? This would most likely take care of the many complaints you have.” The all too eager yet...
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Lajla, Adrenal Bio
Hi! My name is Lajla, born 1967, in Umeå, Sweden. In August 2012 I was diagnosed with Cushings Syndrome (adrenal). My health status by this time was terrible, with almost every part of My body affected...
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Catherine B, Pituitary Bio
I’ve had random symptoms off and on for years (almost two decades now, from about the age of 15) but didn’t realize they were related to illness, or that I had one overarching disease causing them all....
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Holly (Zeus218) Steroid-Induced Bio
Hi.., I am hoping not to confuse you all with my roller coaster history. I have exogeneous Cushings which was close to impossible to diagnose. In the past few years I suffered from the symptoms of...
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Brenda, Steroid-Induced Cushing’s
I have had Cushing’s for two years. I have been to Mayo Clinic four times in the last two years, and just recently was accepted and seen at the National Institue of Health’s Rare Disease Program in...
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Janice B (NotSoCushie), Pituitary Bio
The pituitary gland Hi All: I had Cushing’s with a pituitary tumor. My endo always said I had too many symptoms. He said he could isolate the Cushing’s symptoms, but he was still left with a handful...
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Zoann M (Zoann), Steroid-Induced Bio
In July 2010 I was rushed to the hospital by a friend who was convinced that I was dying. Having had asthma for many years, I kept telling her I wasn’t having an asthma attack, I was just so tired I...
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Vicki (Pugmom), Steroid-Induced Cushing’s
I am a recent transplant to San Diego and I am looking for a Cushings support group. I acquired adrenal insufficiency and Cushings about 3 years ago. I was given large amounts of steroids for...
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LaDawn (NanaX3), Adrenal/Prolactinoma bio
I am a 54 old wife, mother and grandmother. I have been terribly ill for 17 months with adrenal insufficiency and a prolactinoma. I do not know yet if it is a nonfunctioning tumor or not, but I...
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29 Years ~ Giving Thanks
Today is the 29th anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and...
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